CMV and Washington State

Congenital cytomegalovirus (cCMV) has a higher occurrence than any other disorder currently mandated through the Washington State Newborn Screening Program. There is a close relationship between the ESTIMATED occurrence of each disorder and the ACTUAL number of infants diagnosed with the disorder through the Washington State Newborn Screening Program. But, since cCMV is not mandated, there were approximately 424 babies that should have been diagnosed in 2019.

These babies could have been treated. They could have received early intervention.

However, they were not screened.

CMV Screening

The Washington CMV Project submitted a petition to the State Board of Health to mandate CMV education and screening in Washington. Visit our Advocate page to learn more about this progress.

Several states have passed laws to educate women about congenital CMV and/or screen newborn babies. But, Washington State is not one of them.

The Washington CMV Project works with groups across the state to provide information about congenital CMV to pregnant women, their birthing partners, and clinicians. We have worked alongside and provided information to:

  • Planned Parenthood Mount Baker Clinics

  • Planned Parenthood Great Northwest, Hawai‘i, Alaska, Indiana, Kentucky

  • Swedish Hospital OBGYN Providers

  • Washington State Department of Health

  • Washington State Board of Health

  • Leadership Education in Neurodevelopmental and Related Disabilities Program at the University of Washington

CMV Education


For more information about the state of CMV advocacy across the country, visit the National CMV Foundation website.